Day 9 - Mia in the hospital

WEDNESDAY Evening update - day 9:

Mia is a trooper! She had her picc line put in this morning and that went well. Phil and I were able to be in the O.R. room with her while they prepped her and as they put her to sleep... it was wonderful to be able to be there with her but just so heartbreaking to watch. I sang her one of her favorite songs that i've been singing to her since she was a baby as she drifted off to sleep ("Sing Sweet Miabel... mama loves you")

She did well with picc line and was finally able to come up to her room and enjoy some fries and ketchup as requested! (Pastor Kirk came to see her and then her good friend Emma Kate and Jenny too - so nice!).
Tomorrow is a slow day - no procedures are scheduled.

She is scheduled to have another CT Scan on Friday morning - this one will be of the neck and the chest. We are requesting the scan even more though to make sure there are not any other abscesses anywhere else. More than likely she will have ANOTHER surgery on her neck on Friday afternoon (unless a miracle has happened and the scan shows that they have improved!!)
The have diagnosed it finally as being "Streptomycosis" - which is a very rare strain of a very rare disease. They are saying it is treatable.
However, they did a huge panel or bloodwork today today and are checking her for immune problems to figure out why this happened to her. So we are waiting to hear on that too.

THANK YOU TO EVERYONE who has helped with bringing boxes (still need some!), coming to pack tomorrow and visiting and most of all praying! i can't stop being so thankful for you all!

love,
julie