Mia tells us frequently this that is so cute, we just can't correct her!
"I don't like kisses... I like hugg-es!"
so so cute you want to kiss her all over!
I got a big birthday kiss from her today and tight squeezy hugs for a long time... the best gift EVER!
Monday, October 8
Much more whooping and praising to be had...
here at the leininger house today!
It started out as a typically very busy day here with lots of errands when I got a phone call from Dr. Atkins requesting that I hurry to Methodist Children’s Hospital so they could do more tests (via blood work) on Mia.
I hung up the phone and promptly burst into tears right in the middle of my hair salon. Quickly finished up, grabbed Mia from my mom at our hand off point and drove frantically to the hospital.
We waited in the lobby and I tried to administer her afternoon IV and the picc line appeared to be clogged, again, I panicked and burst into tears begging the nurses to please help us… imagining the worst… they paged Dr. Atkins….
After a bit of a wait (watching mia twirl in the lobby in her pink ballerina tutu that she had insisted on wearing to Grammy’s today) and talking about princesses and snacks… we were called in. They did more immune deficiency tests and one other test and then Dr. Atkins came in and REMOVED MIA’S PICC LINE! No more tubes attached to my baby! No more IVs! No more midnight antibiotics and worrying of clogging picc lines! SHE IS THRILLED and so am i!
On her way out – while doing her vitals, she did have a low fever (100) and she has developed a cough. Dr. Atkins is thinking it is probably just a common cold, but quickly did a panel of tests on her with multiple throat and nose swabs. You just gotta love how thorough this woman is!
I dashed off to sign my portion of the paperwork to close on our house that we officially sold today (yay!) as I missed the 3:30 appt, but they waited for me, and Phil finished up paperwork at MCH and walked Mia out. He said her smile and tight-jumping-for-joy-hugs were just as joyful as they were yesterday.
SHE. IS. PRECIOUS!
We then all met up at Chili’s with my parents to celebrate Mia’s wonderful progress in true Leininger family style… LAVA CAKE! J
It really turned into a terrific day and I just had to share!
Love,
Julie and Mia – my happy twirly girl!
It started out as a typically very busy day here with lots of errands when I got a phone call from Dr. Atkins requesting that I hurry to Methodist Children’s Hospital so they could do more tests (via blood work) on Mia.
I hung up the phone and promptly burst into tears right in the middle of my hair salon. Quickly finished up, grabbed Mia from my mom at our hand off point and drove frantically to the hospital.
We waited in the lobby and I tried to administer her afternoon IV and the picc line appeared to be clogged, again, I panicked and burst into tears begging the nurses to please help us… imagining the worst… they paged Dr. Atkins….
After a bit of a wait (watching mia twirl in the lobby in her pink ballerina tutu that she had insisted on wearing to Grammy’s today) and talking about princesses and snacks… we were called in. They did more immune deficiency tests and one other test and then Dr. Atkins came in and REMOVED MIA’S PICC LINE! No more tubes attached to my baby! No more IVs! No more midnight antibiotics and worrying of clogging picc lines! SHE IS THRILLED and so am i!
On her way out – while doing her vitals, she did have a low fever (100) and she has developed a cough. Dr. Atkins is thinking it is probably just a common cold, but quickly did a panel of tests on her with multiple throat and nose swabs. You just gotta love how thorough this woman is!
I dashed off to sign my portion of the paperwork to close on our house that we officially sold today (yay!) as I missed the 3:30 appt, but they waited for me, and Phil finished up paperwork at MCH and walked Mia out. He said her smile and tight-jumping-for-joy-hugs were just as joyful as they were yesterday.
SHE. IS. PRECIOUS!
We then all met up at Chili’s with my parents to celebrate Mia’s wonderful progress in true Leininger family style… LAVA CAKE! J
It really turned into a terrific day and I just had to share!
Love,
Julie and Mia – my happy twirly girl!
A Good Report! (October 4th, 2007)
GOOD NEWS!
After over 2 hours of waiting… the dr. spoke with us and told us that Mia’s CT Scan showed that she has REALLY IMPROVED!!!!!!!!
Meaning – the meds are working, no more surgeries!
She is waiting a few more days to hear from the CDC in Tyler, TX, but after that she thinks she will remove the PICC line and switch her to some strong oral antibiotics!
Mia REALLY broke down today when she found out we were going to the hospital. She started crying big heavy tears that dripped onto my leg as I carried her out the door, it was heartbreaking.
BUT! As her daddy, she and I were walking towards the door of the hospital on our way OUT she stopped in her tracks and said “Huh?! Are we going HOME?!” and we said “YES!”
She gasped with excitement and jumped into my arms for the biggest hardest hug ever and she had the most enormous smile on her face with her eyes squeezed shut. It was a HUGE moment of celebrating for the three of us, right there in the middle of a busy hospital lobby. What celebrating there is to be done!
God is so good and so faithful to heal our sweet baby girl and we are so thrilled, we have all 5 been laughing, and dancing and singing our hearts out all night. THANK YOU LORD! And thank you FAMILY AND FRIENDS for your prayers and encouragement!
What a sigh of relief we are all breathing tonight… next step, no more IV… but we are almost there!
Praising God and loving my family,
Julie
After over 2 hours of waiting… the dr. spoke with us and told us that Mia’s CT Scan showed that she has REALLY IMPROVED!!!!!!!!
Meaning – the meds are working, no more surgeries!
She is waiting a few more days to hear from the CDC in Tyler, TX, but after that she thinks she will remove the PICC line and switch her to some strong oral antibiotics!
Mia REALLY broke down today when she found out we were going to the hospital. She started crying big heavy tears that dripped onto my leg as I carried her out the door, it was heartbreaking.
BUT! As her daddy, she and I were walking towards the door of the hospital on our way OUT she stopped in her tracks and said “Huh?! Are we going HOME?!” and we said “YES!”
She gasped with excitement and jumped into my arms for the biggest hardest hug ever and she had the most enormous smile on her face with her eyes squeezed shut. It was a HUGE moment of celebrating for the three of us, right there in the middle of a busy hospital lobby. What celebrating there is to be done!
God is so good and so faithful to heal our sweet baby girl and we are so thrilled, we have all 5 been laughing, and dancing and singing our hearts out all night. THANK YOU LORD! And thank you FAMILY AND FRIENDS for your prayers and encouragement!
What a sigh of relief we are all breathing tonight… next step, no more IV… but we are almost there!
Praising God and loving my family,
Julie
Thursday update on Mia - CT Scan, October 4th
Hey everyone!
Wanted to quickly update – Mia has been doing wonderful at home with all of her IV meds and oral meds here at home. She is so wonderful about taking it all and even likes to help push her own iv meds in. Dr. Mia we call her - and she giggles and says “I’m just pretending!”
She had a follow up appt with Dr. Atkins (infectious disease specialist) on Tuesday morning who confirmed that what Mia had is “So rare! One for the books! You are just 1 in a million and so special Mia!” She was very nice. She said her immune deficiency tests did come back abnormal, but they are hoping that is just because she has been so sick in the hospital. They are going to do the blood work again. Hopefully she will be OK.
She is having another CT scan today at 1:30 at Methodist children’s hospital. The results of that will tell us a lot. If they are REALLY good, she might get her PICC line out today and not have to do the IV meds anymore… if they are really bad, then we will go from there. The dr. is meeting us at the hospital today to talk to us about the results.
They JUST made the appt. this morning at 8:45, so that is why I am just now letting everyone know. Sorry for the delay in communication.
Thanks for keeping her in your prayers and thoughts and for all you are to our family!
More later… hopefully all bright and cheerful news!
Love,
MamaMia! J
Wanted to quickly update – Mia has been doing wonderful at home with all of her IV meds and oral meds here at home. She is so wonderful about taking it all and even likes to help push her own iv meds in. Dr. Mia we call her - and she giggles and says “I’m just pretending!”
She had a follow up appt with Dr. Atkins (infectious disease specialist) on Tuesday morning who confirmed that what Mia had is “So rare! One for the books! You are just 1 in a million and so special Mia!” She was very nice. She said her immune deficiency tests did come back abnormal, but they are hoping that is just because she has been so sick in the hospital. They are going to do the blood work again. Hopefully she will be OK.
She is having another CT scan today at 1:30 at Methodist children’s hospital. The results of that will tell us a lot. If they are REALLY good, she might get her PICC line out today and not have to do the IV meds anymore… if they are really bad, then we will go from there. The dr. is meeting us at the hospital today to talk to us about the results.
They JUST made the appt. this morning at 8:45, so that is why I am just now letting everyone know. Sorry for the delay in communication.
Thanks for keeping her in your prayers and thoughts and for all you are to our family!
More later… hopefully all bright and cheerful news!
Love,
MamaMia! J