Thursday update on Mia - CT Scan, October 4th

Hey everyone!
Wanted to quickly update – Mia has been doing wonderful at home with all of her IV meds and oral meds here at home. She is so wonderful about taking it all and even likes to help push her own iv meds in. Dr. Mia we call her - and she giggles and says “I’m just pretending!”

She had a follow up appt with Dr. Atkins (infectious disease specialist) on Tuesday morning who confirmed that what Mia had is “So rare! One for the books! You are just 1 in a million and so special Mia!” She was very nice. She said her immune deficiency tests did come back abnormal, but they are hoping that is just because she has been so sick in the hospital. They are going to do the blood work again. Hopefully she will be OK.

She is having another CT scan today at 1:30 at Methodist children’s hospital. The results of that will tell us a lot. If they are REALLY good, she might get her PICC line out today and not have to do the IV meds anymore… if they are really bad, then we will go from there. The dr. is meeting us at the hospital today to talk to us about the results.
They JUST made the appt. this morning at 8:45, so that is why I am just now letting everyone know. Sorry for the delay in communication.

Thanks for keeping her in your prayers and thoughts and for all you are to our family!

More later… hopefully all bright and cheerful news!

Love,
MamaMia! J