Hello Everyone,
Today is day 13 and we are STILL HERE. We had high hopes of maybe being released today, but it was no such luck, even with our begging we got no where.
Dr. Atkins finally told phil after a lot of conversation that she “wouldn’t be a good dr. if she let mia go home without knowing what this is and having all the answers.”
Phil said “Well, what IS this?? what does she have!?”
And she said “it’s something very very rare and if I let her go home and the home health nurse misses some subtle sign of something and this gets worse it could get so out of control that we wouldn’t be able to get a reign on it and it would be irreversible.”
Not a happy answer, but a really good reason to keep her here! That is what I needed. (Although we are not thrilled to be here, obviously.)
Dr. Atkins said she called the CDC of Texas (center for disease control) in Tyler, and talked to their very top person and told them how important this case was and that Mia is on priority and they should have something tomorrow. So we will pray that it is GOOD news and not any more problems. The new labs will show the dr. if they should change meds or what. Hopefully it will be something that allows us to go home soon. We will see.
Thankfully our good friend Sutton is on her way up to watch Mia at the hospital so I can run home and try to get their rooms set up in the new house and help Phil unpack. Ella is napping and spending more time with my mom today. Jacks is with Phil.
This is just so crazy. My daughter has such a rare disease that no one even knows what it is! What in the WORLD???????????????????????????
Thankfully, GOD KNOWS! Hopefully the rest of us will know soon too and get this show on the road and get this sweet girl back home with her family! These 2 weeks apart from everyone and apart from PHIL! (ack! It’s killing me!!) is just too much. Though, we do know, the situation could be so much worse, we are trying to keep it all in perspective.
But that is the latest today! Just wanted to give an update! Thanks!
Love,
Julie
About Me
- MamaMiaJacksElla
- I am a stay at home mama who is blissfully happily married! My three children are the joys of my day and the creators of my messes! "Surely Goodness & Mercy will follow Me all the days of my Life!" Psalm 23:6
I love this man...
my very best friend, the absolute love of my life, and the best daddy to my children. who could ask for anything more?
4 comments:
Feeling bad for all of you and praying that you can have peace leaving it in God's hands. Is there any chance Mia picked up the bacteria at the new property or the rental house? Does the EPA or health dept. need to get involved? Just ideas. :)
Love,
Aunt Darlene
ugh, julie. this IS so crazy. i can NOT imagine what you are all going thru. you have to all come out of this stronger, though, right?? i'm praying for you all every day, lots of times a day! i'm in dallas this and can't check my email on my new account, so you can use my old one...tyler.amy@earthlink.net. love you!!!
julie, i can't check my new email (i'm in dallas this week), so you can email me at my old one...tyler.amy@earthlink.net. i'm praying for you all, all the time...quick answers and quick healing! i can NOT imagine what you are all going thru. love you!!!
julie, i'm in dallas and can't check my email thru my new account. i can still get tyler.amy@earthlink.net, though!!! didn't want you to think i'd forgotten about you all...praying all the time...fast answers AND healing! love you...
-amy
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